Support Groups, Inc.
of Northern & Central California
PD Portal - link to research, advocacy, care and support
Parkinson's Disease Organizations
There are many organizations focused on research, advocacy, care and support for the Parkinson's community.
These include national non-profits, medical and research centers, government agencies, regional support groups, and advocacy groups.
Each has its own special focus, but all share the common goals of improving the lives of those affected by Parkinson's disease and someday finding a cure.
National Parkinson's Organizations
The following national non-profit organizations are excellent sources of information about Parkinson's Disease and the latest research, clinical trials, fundraising and advocacy efforts underway to find better treatments and a cure. For further information about any organization, please visit their website or call them directly.
--------------------------------------------------------------------------------------------------
American Parkinson Disease Association
www.apdaparkinson.org
phone: 1-800-223-2732
The American Parkinson Disease Association, Inc. was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. Headquartered in New York, the organization focuses its energies on research, patient services, education and raising public awareness about the disease. APDA supports nine Centers for Advanced Research, 52 regional Information and Referral (I&R) Centers, 45 chapters, and 250 affiliated support groups nationwide.
--------------------------------------------------------------------------------------------------
The Michael J. Fox Foundation for Parkinson's Research
www.michaeljfox.org
phone: 1-800-708-7644
The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today.
--------------------------------------------------------------------------------------------------
National Parkinson Foundation
www.parkinson.org
phone: 1-800-4PD-INFO (473-4636)
Unique among other Parkinson's organizations, NPF has a singular focus - our mission is to improve the quality of care through research, education, and outreach.
NPF has created a global network serving the needs of the Parkinson’s community including:
- 43 Centers of Excellence at top medical centers across the globe, including 28 in the U.S. and 15 internationally;
- 14 Care Centers at leading community hospitals in North America;
- 39 U.S. chapters and 900 support groups serving 100,000 people with Parkinson’s and their families.
Parkinson's Disease Foundation
www.pdf.org
phone: 1-800-457-6676
The Parkinson’s Disease Foundation (PDF) is a leading national presence in Parkinson’s disease research, education and public advocacy. We are working for the nearly one million people in the US who live with Parkinson’s by funding promising scientific research while supporting people living with Parkinson’s through educational programs and services.
--------------------------------------------------------------------------------------------------
Parkinson's Action Network (PAN)
www.parkinsonsaction.org
phone: 1-800-850-4726
We are the unified voice of the Parkinson’s community advocating for better treatments and a cure. In partnership with other Parkinson’s organizations and our powerful grassroots network, we educate the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson’s.
--------------------------------------------------------------------------------------------------
The Parkinson Alliance
www.parkinsonalliance.org
phone: 1-800-579-8440
The Parkinson Alliance is a national non-profit organization dedicated to raising funds to help finance the most promising research to find the cause and cure for Parkinson's disease.
--------------------------------------------------------------------------------------------------
The Parkinson's Institute and Clinical Center
www.thepi.org
phone: 1-800-655-2273
The mission of The Parkinson’s Institute (The PI) is to provide comprehensive patient care, while discovering new treatment options to improve the quality of life for all Parkinson’s disease (PD) patients. As America’s only independent non-profit organization combining research and patient care for PD under one roof, we are committed to changing the landscape of movement disorder treatment and research.
--------------------------------------------------------------------------------------------------
Additional Parkinson's Organizations
Some of the numerous other organizations that provide resources, care and support for the Parkinson's community are listed below. To learn more, click on their names to visit their websites.
Government
- National Institute of Neurological Disorders and Stroke (NINDS)
Medical and Research Centers
- Morris K. Udall Parkinson's Disease Research Centers of Excellence
- Muhammad Ali Parkinson Center
- National Parkinson Foundation Centers of Excellence
- U.S. Dept. of Veterans Affairs Parkinson's Disease Research, Education, and Clinical Centers
- Parkinson's Study Group
Atypical Parkinsonism
- CurePSP, Foundation for PSP | CBD and Related Brain Diseases
- Lewy Body Dementia Association
Deep Brain Stimulation (DBS)
- DBS4PD.org, an affiliate of the Parkinson Alliance
Young Onset
- APDA Young Onset Center
Regional Organizations Providing Support and Resources
- Columbia Parkinson's Support Group South Carolina
- Northwest Parkinson's Foundation
- Parkinson Association of the Carolinas
- Parkinson Association of the Rockies
- Parkinson's Patients Support Groups, Inc. (Northern & Central California)
Education and Advocacy
- Clognition
- Davis Phinney Foundation
- European Parkinson's Disease Association
- Parkinson's Health.com
- The Melvin Weinstein Parkinson's Foundation
- Parkinson Pipeline Project
- Parkinson Research Foundation
- PDIndex
- PD Plan4Life
- WeMove (Worldwide Education and Awareness for Movement Disorders)
If you would like to see other organizations listed here, please contact us at ppsginfo@yahoo.com or 408-542-5610.
